"No one knows why Simon died because, although epilepsy is the most common neurological brain disorder in the world, it is also the most neglected"
A mother writing after her son died, aged 31

"We owe a debt of gratitude to Epilepsy Bereaved and all those who have given their time, efforts and energy to support its valuable work..... no one listening to them can under-estimate the scale of the problem"
Paul Boateng, Under-Secretary of State for Health, June 1998

Epilepsy Bereaved is a charity that:

Works towards the prevention of deaths form epilepsy through raising awareness and promoting research.

Provides information and support to people bereaved by epilepsy

In order to help fulfill these aims, Epilepsy Bereaved has undertaken work in the following areas:

National Sentinel Clinical Audit into Epilepsy Deaths

2004 Media Alert - Consensus Epilepsy Services

Information and Support for bereaved families

Information for People with epilepsy and their families

Information for Professionals

Research into SUDEP

 

Please visit Call to Action 2002 for information on
how you can help the work of the charity 

epilepsybereaved@dial.pipex.com
Written for Epilepsy Bereaved by Fenn-Smith Solutions
© Epilepsy Bereaved 2000